When I Bonded With a Stranger Over Having Thyroid Disease

In July last year, I completed the 5k Color Run course, raising money for Thyroid UK, a charity that campaigns for and provides information and support to those with thyroid disease and related disorders. I wanted to help them in their mission to provide information and resources to promote effective diagnosis and appropriate treatment for people with thyroid disorders. As someone with hypothyroidism, it was really important to me.

The 5k went well and at a pub in the evening, while having a drink to celebrate my achievement (having hypothyroidism made the course difficult to complete), I visited the toilet. After coming out of the cubicle and washing my hands in the sink, I commented on the pair of amazing shoes the woman standing next to me was wearing. They were mega high and bright pink and sparkly. She explained that she was here for a wedding and asked what I was here for. I replied that I had done the The Color Run that day, going on to explain what it was.

13537695_10210191349487334_4972579080375400969_n Continue reading “When I Bonded With a Stranger Over Having Thyroid Disease”

An Open Letter: “Dear Hypothyroid Patient”

Dear hypothyroid patient,

Through having an underactive thyroid, you will feel lost, frustrated and lonely. At times, you will feel fed up.

You will also become stronger, more independent and protective of your health.  Continue reading “An Open Letter: “Dear Hypothyroid Patient””

Our ‘Invisible Illness’ Isn’t Really Invisible

Hypothyroidism, also called an underactive thyroid and thyroid disease, is an invisible illness. This means that the effect it has on someone living with it isn’t always obvious or visible, but it doesn’t make it any less impacting on the person’s life. 

Around 750 million people in the world live with some form of thyroid disease, yet many keep their health condition concealed, afraid that friends, family and co-workers just won’t understand this often debilitating condition. 

Let’s try to understand. 

Here are real people, holding real statements, who have really been affected by thyroid disease and want people to start realising. 

Our ‘invisible illness’ isn’t really invisible. Look closer.  Continue reading “Our ‘Invisible Illness’ Isn’t Really Invisible”

What Did Hypothyroidism Do to You?

I’m currently working on a new project.

I am wanting to get as many of us as possible to hold a piece of card or paper in a photo, saying what hypothyroidism has done to us, in order to create a powerful blog post or huge collage of them to make people more aware of just what we go through/have gone through with hypothyroidism.

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I want to grab peoples’ attention and make them think.

I want to make them REALISE.

We all have varying statements to make on how it’s affected us, such as:
‘Hypothyroidism ruined my ability to work.’, ‘Hypothyroidism stole my hair.’, ‘Hypothyroidism ruined my relationship.’, ‘Hypothyroidism stole my happiness.’

Real, thought-provoking statements held by real people who have REALLY gone through this and been affected by it.

I want people to take notice and be aware of what it does to us.

You can send your contribution to invisiblehypothyroidism@gmail.com or use the hashtag #theinvisiblehypothyroidism 

When Someone Says I’m Too Young to Have a Chronic Illness

Chronic illness. It’s a term that sounds scary and dramatic to some.

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A chronic illness is a condition or disease that is long-lasting and usually lifelong, which includes Hypothyroidism and Hashimoto’s. Having a chronic illness, well two of them actually, I often refer to myself as a ‘Spoonie‘, someone with a limited amount of energy. More info here.

When people ask me what a Spoonie is, and I explain that I have a limited amount of energy that affects my day to day life, so much so that I have to plan my use of ‘spoons‘ i.e. energy, wisely, I often receive a nod of recognition. But I have also been told “You’re too young to have a chronic health condition!” or “You won’t be really ill for years yet.”

Erm. I do have a chronic illness. A few, actually. And I have been really ill!

Continue reading “When Someone Says I’m Too Young to Have a Chronic Illness”

When People on Public Transport Think I Don’t Need My Seat

When You Feel Like a Burden

Some days I feel like a burden. I know having hypothyroidism, Hashimoto’sadrenal fatigue (the list goes on) is not my fault, but I do at times feel like I put people out because of it. I feel as if I cause them trouble. At times, I feel as if me just existing puts a huge weight on the world.  Continue reading “When You Feel Like a Burden”

An Open Letter: “Dear Doctor, It’s Not All in My Head”

This ‘open letter’ has been inspired by the large amount of thyroid patients who are told by doctors that their symptoms are ‘all in their head’, dismissed and made to feel like hypochondriacs. I experienced this myself, and on such a day, I came home, ordered the new thyroid medicine I wanted to try and set up this blog.  Continue reading “An Open Letter: “Dear Doctor, It’s Not All in My Head””

Thyroid Patients Explain What Thyroid Fatigue Really Feels Like

I asked fans of my Facebook page how they would describe thyroid fatigue to other people, because, let’s face it, it’s not just ‘tiredness’ or being ‘sleepy’. It’s much more than that.

When people say “Oh yeah, I’m tired too!” or “You need an early night!” it’s really infuriating. It’s not a matter of having a bad nights sleep or a late night. Our body is literally deprived of hormones meant to keep us functioning properly. 

So, I asked: “It’s hard to describe to those who don’t experience it, but if you could put it in to words, what would it be?” Continue reading “Thyroid Patients Explain What Thyroid Fatigue Really Feels Like”

11 Things People Get Wrong About Me Having Hypothyroidism

I have hypothyroidism.

Thyroid disease.

An underactive thyroid.

Whatever you prefer to call it. 

And those who don’t know what it is can often make assumptions about it, so let me clear a few things up!

Continue reading “11 Things People Get Wrong About Me Having Hypothyroidism”