- Always being cold. Or on the odd occasion, having a hot flush. Then resuming to being cold again.
- The scariness of your hair falling out.
- Gaining weight even though you’re eating all the right food in the right portions.
- Being unable to lose weight when you’re trying everything you can.
- Getting a decent amount of sleep, but STILL waking up more tired than the night before.
- Brittle hair and nails.
- Even the simplest of questions are nearly impossible to answer when you have thyroid brain fog.
- Sometimes your thyroid brain fog makes you do silly things. Like putting the dirty laundry in the bin in stead of the washing machine, or mixing up words and talking a load of gobbledegook.
- Nothing helping your dry and tight feeling skin.
- Doctors most often refusing to give us the medication and testing that we need to feel well. Surely that’s not right?
- Friends, family and co-workers thinking we’re lazy, unproductive or ‘slow’ in what we do. Little do they know about all the hypothyroidism symptoms.
- Your body feels like the worst flu ever, with achy muscles and stiff and painful joints.
- Having a croaky voice on particularly bad thyroid days.
- That mental illnesses and other conditions such as depression, anxiety and insomnia often come hand in hand with hypothyroidism, with most patients having at least one mental health condition.
- Your menstrual cycle being irregular and sometimes a lot more heavy and painful.
- Thyroid medication is needed for life.
- Just because we’re on thyroid medication, doesn’t mean we feel better. A lot of patients aren’t on the right type of medication. There are a few different types but most doctors only consider one of them and it doesn’t work for many.
- You often have no appetite.
- Being tired is much more than anyone else understands.
- You love your bed more than anyone will ever know.
- Your life tends to revolve around sleep and energy levels.
- When people tell you ‘you just need to get enough sleep’ or ‘you just need to eat healthy’, in a bid to help you, but little do they know! We wish it was that simple!
- When you have to cancel on plans with friends, and they think you’re being a cop-out, but you can’t even lift yourself off the sofa as your body feels like a million tonnes.
- When you’e one of the many thyroid patients who also have Hashimoto’s, and so you go gluten-free to help your symptoms, people don’t understand why you may be ‘awkward’ when eating out. “Just have gluten this one time, it won’t harm!” Yes, yes it will.
- When changing to regular clothes from your PJs means you’re having a good day.
- When doctors won’t help you and insist that ‘everything is in your head’.
- When you’re part of an on-line forum or support group who are much more help than any doctor you’ve tried or most people around you.
- It hurts when no one understands that it is a life changing, lifelong condition.
- A lot of us turn to self-medicating in order to have any chance of getting better (but I would always suggest finding a doctor who will work with you).
- We have to learn to examine our own necks for goitres.
- Having hypothyroidism makes us more prone to other autoimmune conditions, getting ill more often, and especially adrenal fatigue.
- We rattle because we have to take so many pills, tablets, supplements etc.
- Even many endocrinologists, thyroid specialists, aren’t much more helpful than regular doctors.
- Some of our closest friends are those from on-line thyroid forums or support groups.
- Hypothyroidism can occur in men too. It’s a lower percentage, but still occurs.
- Doctors tend to send us away with a prescription, without telling us much about the actual condition.
- Trying to run a family and maintain a social life, as well as work and complete day-to-day tasks is nigh on impossible.
- We just want people to listen and try to understand what we go through and have to put up with!
- Putting on loads of layers often results in us STILL feeling cold.
- Someone asking how we’re doing often means the world to us.
- No amount of make up hides the horrendous bags under our eyes.
- It’s not our fault we have hypothyroidism.
- Keeping up a job is sometimes very difficult.
- Worrying about passing the condition on to our children.
- A ‘lazy day’ is our idea of heaven.
- We tend to forget what ‘normal’ feels like.
- We’re prone to vitamin deficiencies such as iron, Vitamin B and D.
- Sometimes we just need to rant about the the frustration of having the condition.
- Feeling 50 years older than you actually are, due to the symptoms of hypothyroidism.
- Feeling sick and tired of feeling sick and tired.
Rachel, The Invisible Hypothyroidism
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