Just as I’d Thought!

Following on from my blog post the other day and the latest letter I received from my endocrinologist, I saw my GP today, who was indeed wanting to discuss my endo’s latest letter. 

My endocrinologist advised that my TSH was a little too low, and although both my Free T3 and Free T4 still read really well, he advised that I reduced my NDT from 2 tablets a day to 1.75. This was said a few weeks ago in his letter.

What I find funny, though, is that he says with my TSH reading, I am technically now overactive, yet someone else with an overactive thyroid and that TSH likely wouldn’t be given treatment, due to the lack of care for those who only fall ‘slightly’ in or out the range. They’d be told to go away and see if it corrects itself. That a test would be done in another 6 months to see how it’s doing. By which time, their hyperthyroidism is much worse and they feel much worse. How ironic is that? Here I am, falling slightly out my hypo range, and he declares me on too much of a medication he doesn’t endorse. Funny that. Ironic.

However, with moving house and everything, I didn’t feel it was a particularly great time to trial his experiment, since I was convinced it’d make me more tired again, so I put it off until last week, when things had calmed down.

And I went in today to see my GP and explained this to him. He was fine with it. In fact, he was a little baffled. He felt my TSH was fine, and that all my blood levels read really well.

He said that coupled with the fact that I look and feel really well, he is happy for me.

And I’m happy that he’s happy that I’m happy! I’m doing well. With my high cortisol, I do still have fatigue, but it doesn’t affect me really, now, and it’s manageable. I feel good lately. I’m still convinced that my thyroid levels are good, so my on-going fatigue is either adrenal related and/or Hashimoto’s related, of which going gluten free is supposed to help. Although I’m seeing no results so far.

But, my GP and I agreed I may as well trial the endo’s suggestion and see what happens. So, I’m booked in for a blood test to test my levels again, in 5 weeks time. I’m seeing the endo at the end of next week. Which will be fun..

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I run a Facebook group, called Thyroid Family: Hypothyroidism Advice & Support Group. This group is for underactive thyroid/hypothyroidism patients only, and not medical professionals or anyone else. If you have any questions on living with hypothyroidism, or want some support, help or advice, please join us. 

I also run a group for the spouses, partners and other halves of hypothyroid patients, called Hypothyroid Patients Other Halves – Support & Advice Group. This is for the other halves only and not patients. 

-Rachel

About Rachel Hill, The Invisible Hypothyroidism

Diagnosed with Hypothyroidism, Hashimoto’s Thyroiditis and Chronic Fatigue Syndrome (ME), as well as having Adrenal Fatigue and experience with Depression and Anxiety Disorder, Rachel Hill blogs at theinvisiblehypothyroidism.com to help others, covering all aspects of what it’s like to have these conditions. Rachel is one of the many faces of thyroid disease and she’s passionate about helping those with hypothyroidism and giving them a voice.
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