What a difference getting the right medication makes. Photo on the left taken 6 months ago, other one taken the other day.
I’m just about back to my pre-hypothyroidism weight, and all because I dared to take my health back in to my own hands.
Sure, your weight and appearance isn’t what defines you. It isn’t the most important thing. And I didn’t actually mind being this heavier weight. What it did symbolise though, was my lack of control over my own health. It symbolised yet another blimmin’ way that this stupid, tiny, butterfly shaped gland in my neck had taken over everything. It was another symbol of how medical professionals had failed me, among over 20 other symptoms, a crumbling work life, personal life, social life, and mental state.
The weight gain was at the bottom of the list of symptoms my inadequately treated hypothyroidism had caused me, with fatigue, brain fog and excruciating pain being at the top. But losing that 2 stone gained by simply changing thyroid medication, when doctors told me it wouldn’t work, proved them wrong and symbolised progress in me getting well again. The weight melted away as if by magic. All I did was maintain a 1600 calories a day diet.
Losing all my other 20+ symptoms too, by simply changing thyroid medication, when doctors told me it wouldn’t work, proved them wrong.
They told me I was imagining all my symptoms. They told me it was all just in my head. They told me I needed to see a nutritionist because I was gaining weight by a bad diet and not moving enough. They called me an attention seeker. All of these symptoms and weight gain couldn’t possibly be from my underactive thyroid, when your thyroid controls your metabolism and is in charge of every function and every cell in your body, right?
But they didn’t know my body as well as I did, and I knew their ‘gold-standard’ medicine and inaccurate TSH testing wasn’t working. I was actually getting worse.
So I researched. I reached out to thousands of other thyroid patients and I tried things. I changed medication and I made this recovery. Of over 20+ symptoms disappearing. Of weight gain dropping off again. Of a restored mental and physical state. I now lead a pretty normal life and my thyroid rarely has any affect on anything. (I also have adrenal fatigue, but that’s another thing!)
Doctors? The majority still tell me it was a coincidence. That’s why I want to help others. Because no one should be kept ill for something which can be effectively treated and managed. We all deserve good medical care and a good quality of life. Keeping people so devastatingly unwell is a scandal and we must make others aware.
A note – please don’t make jokes about people having extra weight on them from ‘a thyroid problem’. We know you use it as code for someone making up excuses for being ‘fat’. And it hurts. If you suddenly had an organ fail and your life fall apart, through no fault of your own, how would you feel if people used it in a flippant manner? Don’t joke ‘oh maybe I have a thyroid problem!’ for your own weight gain if you know you don’t, either. It belittles a very devastating disease.
I hated this photo, when it was taken back in January. Now it reminds me of how far I’ve come, how much stronger I am, and most importantly, how I have my life back!
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I also run a group for the spouses, partners and other halves of hypothyroid patients, called Hypothyroid Patients Other Halves – Support & Advice Group. This is for the other halves only and not patients.