Going gluten free can be daunting and scary. It can seem like too much effort and as if it constricts what you can eat considerably. It can seem downright frustrating. I’ve had sleepless nights over it!
Whether you’re thinking of or wanting to go gluten free for reasons such as having the autoimmune disease Hashimoto’s Thyroiditis (very common, apparently around 90% of us with an underactive thyroid have this), as gluten can aggravate this and progress the condition, or whether you feel it causes you stomach issues after testing positive or negative for coeliac/celiac disease, I hope this guide on going gluten free helps.
First of all, know that this is all going to be OK.
You will get the hang of this. Take it from a total foodie who is always munching on something and never stops thinking about food. It’s rather sad but I’m willing to admit that my life practically revolves around food and what I’m going to be eating next. Unless I love the taste of something, I don’t eat it. I’m thinking about dinner when I’m eating my lunch and much of my hobbies and social life revolve around food. I’m that annoying person on your Facebook, Snapchat and Instagram who takes photos of their food and hot chocolate every day. Yep.
But you know what? I’m gluten free and I’m not finding it difficult.. Anymore.
That ‘anymore’ is very important.
I did indeed find it difficult and frustrating at first, but not anymore.
So where to start?
OK, let’s start with what you should avoid. On a gluten free diet you should avoid any foods that contain: gluten, wheat, oats (unless definitely uncontaminated by gluten), barley, rye or malt. You’ll probably be surprised at just how much food contains these things, such as some chocolate bars, alcohol, sauces, vinegar and condiments. The obvious foods that contain them also are bread, pasta, pizza, biscuits, cake and porridge.
You’ll need to adopt a strict behaviour of checking every single thing you eat and drink (although drinks are typically less likely to contain gluten). Every ingredients label, everything you eat at a restaurant or even a family member’s or friend’s house needs to be inspected, so adopt a behaviour that is confident and assertive. If any meal, food or drink you are presented with contains gluten, wheat, oats (unless definitely uncontaminated by gluten), barley, rye or malt, you cannot eat it.
As time goes on, you’ll realise the typical culprits that contain gluten, so eating out and round a friend’s house will become easier. For example, I default to meat, veg and salad dishes when out as they are naturally free from gluten. But you can ask the restaurant for their gluten free menu (which shows the meals that are gluten free), or they will point out the gluten free options on the regular menu. Either way, they are legally obliged to have this information handy and for it to be accurate and up to date, so you’re not causing them any trouble. This is something they must already have.
The same goes for take-aways. You’ll find that this is probably the hardest with gluten free options. Many do not offer their allergen information online, so you’ll need to call the restaurant directly and ask them to make sure there is no gluten, wheat, oats (unless definitely uncontaminated by gluten), barley, rye or malt in the items you’re thinking of ordering. Also check they’re prepared and cooked separately to avoid cross contamination. If you don’t trust them or they sound unsure, don’t risk it. It’s not worth it.
What I’ve found on take-aways:
Pizza/Italian – Very rarely safe. Ask if they have gluten free pizza bases, if all toppings are gluten free and if they’re cooked in separate ovens and prepared on separate work spaces. Ask if they have gluten free pasta and if sauces contain gluten. Not common to find something here gluten free.
Indian – My favourite because of how simple it is! Most starters, such as samosas for example, contain gluten, but mains should be fine. Most Indian curries use milk over wheat to thicken sauces, but do double check. Rice should be fine. Poppadoms usually use rice flour which is gluten free, but double check. Naan bread contains gluten.
Chinese – Most sauces appear to contain wheat to thicken them up and noodles use wheat flour, too. I find Chinese food impossible for gluten free diets.
Thai – Seems mixed. Most main meals appear to use milk over wheat flour to thicken sauces, and rice noodles over regular noodles, but do double check with the chef. Like Indian restaurants, starters and nibbley bits usually contain gluten.
French – Crepes are usually made using wheat flour but many places are now offering gluten free crepes. French cuisine is big on salad, meat and veg dishes so on the whole should be safe. But check sauces and dressings.
Mexican – Soft tortilla’s tend to contain gluten, but the hard ones, such as tacos tend to be gluten free, using cornflour. Check sauces for gluten!
Cross Contamination – Eating Out
Another thing you’ll want to factor in when eating out (take-aways/restaurant/at a friend’s house) is how food is prepared. Cross contamination means that your gluten free meals may be being prepared on surfaces and in the same pots as gluten-containing food, e.g. chips/fries that are naturally gluten free, being fried in the same oil as onion rings (gluten alert!) which contaminates them. They may also be using the same surface to prepare your gluten free burger, as when they prepare a regular, gluten-filled burger. Generally, I ask when I order food, if it is prepared separately to gluten-containing foods, and if it is cooked/fried separately to anything else altogether e.g. no shared oil or equipment. I find that this is rather evenly split, so often, I cannot have chips for example, but I’ve learnt to live without them. It’s just the way it is now, and quite frankly, it has me eating healthier for it.
On a gluten free diet, it’s important not to eat any foods cross contaminated with other gluten-containing food.
Cross Contamination – At Home
The easiest way to control cross contamination is by eating and preparing as much food at home as you can, because then you’re in control. You’ll need to bare in mind that if you live with someone who does eat gluten, then separate cooking equipment will be needed, e.g. separate toasters for bread and separate utensils such as wooden spoons, which can hold on to gluten, will be needed. In my house, we have our own toasters, and we mark the wooden spoons, to show which have been used in gluten-containing foods and which are safe and free of gluten. When we’re making dinner, we have to be careful not to mix up things, like for instance, when we make spaghetti bolognese; I have gluten free spaghetti but my other half has regular spaghetti. So we cook both separately, using separate utensils as well, and only taste-test our own to check when they’re cooked. We have to be on the ball!
Work surfaces are cleaned regularly and thoroughly, too, to avoid any glutenous crumbs of bread jumping on to my gluten free bread.
Reading ingredients labels in supermarkets is crucial. You’ll find that a lot of them list gluten, wheat, oats (unless definitely uncontaminated by gluten), barley, rye or malt, in bold to make it clear on the packaging, and many companies are now starting to label products ‘gluten free’ on the front, if their product doesn’t contain gluten, to make it even more easy and attractive to confused shoppers. I’d write gluten, wheat, oats (unless definitely uncontaminated by gluten), barley, rye and malt down on a sheet of paper or put them on a note in your phone, and take it with you to the shops. Check everything you buy to see if it contains any of them. After a shop or two, you’ll know them off by heart.
It’s important to know also that most foods are available as gluten free alternatives and the quality of these are getting better. I have been able to find gluten free versions of pretty much everything (just Maltesers I’m still looking for..) and I’ve not been let down often.
Also, it is true that a lot of gluten free products contain a lot of sugar and can actually be pretty darn bad for you. They’re also typically more expensive. Due to the lack of desired taste, texture or look in gluten free products, companies are pumping them full of sugar and other things to compensate, so you may want to limit your consumption of gluten free products to just treats. For example, gluten free cake, sausage rolls, pizza bases and pasta can be significantly more calorific than their gluten-filled counterparts. You’re better using naturally gluten free alternatives where you can, such as rice noodles over regular noodles for example, or by baking your own cakes and pizza from scratch, so you can control the calorie amount. It’s actually quite fun experimenting with this, too! There’s lots of recipes online nowadays.
One thing I have discovered and find incredibly interesting, is that better quality and more expensive products tend to naturally be gluten free. For example, sausages.. in my local Asda store, the own brand chilled ones contain wheat (gluten), but the own brand, fancier, ‘butcher’s selection’ ones do not.
Another is Bisto gravy. Their regular gravy granules, just like all other brands, contain gluten, but their ‘Bisto Best’ version does not! If you think about what that’s saying about wheat as an ingredient, it gives you a lot to think about..
What’s the deal with oats?
Pure oatmeal (oats) are naturally gluten free, however, many oats are contaminated due to being processed in facilities that also process wheat, barley, and rye (which obviously contain gluten). Any oats that you eat, including those used in products such as flapjacks, must be labelled gluten free or free from contamination to be safe for you to eat. Packaged oats and items with oats in, must be free from contamination in order for them to be legally allowed to be labeled as gluten free.
However, some people can still react/be sensitive to gluten free oats, too. This is one article for example that backs up the idea that ‘gluten free oats’ are not truly gluten free due to avenin, the gluten fraction in oats.
As the article explains:
The term “gluten free oats” is sometimes assigned to oats that have been grown and processed without coming into any contact with wheat, barley or rye (which contain gliadin, hordein and secalin).
However, current laboratory tests can only test for the first three of those, as avenin is a slightly different form of protein. Oats naturally contain avenin and therefore are not truly gluten free. Even tiny traces of gluten can cause symptoms in those with coeliac disease.
Personally, I suspect that they do contain gluten still, as the first time I went gluten free and saw no difference, the only thing I was still eating that might have contained gluten was porridge oats. This time around, I’m not eating oats at all, gluten free or not, and I’m seeing much better results.
What about alcohol?
Typically, cider, wine, sherry, spirits, port and liqueurs tend to be gluten free, but do check that specific brand and type you’re drinking!
With alcohol, some people following a gluten free diet can get confused because gluten containing cereals are often used in making alcohol, but the gluten is removed when it is distilled. All spirits are distilled, therefore this process removes any trace of gluten from the drink. Therefore, all spirit drinks (including malt whisky which is made from barley) are safe for gluten free peeps to consume.
However, some coeliac’s report having symptoms of gluten consumption when drinking spirits still, even though they’ve been distilled. So this has been debated.
Alcohol to definitely avoid includes beer, lager, stout and ale, which contain varying amounts of gluten and are not suitable for a gluten-free diet, but also any spirits or other alcoholic drinks that are flavoured using things like malt.
I would always check out the ingredients, online if you have to, to check whether a drink is gluten free or not.
Specially manufactured gluten-free beers, lagers and ales are available in some shops.
Medicine and supplements
Gluten often appears in some medicine and supplements, so ensure you’re not taking in any gluten from those either.
I bet you haven’t even thought about gluten lurking in make up, lotion, shampoo and conditioner, but yet, there it is. You won’t find it in everything, but it is there.
Look out for:
- Hydrolyzed wheat gluten
- Triticum vulgare (wheat) gluten
- Avena sativa (oat) kernel flour
- Hydrolyzed oat flour
- Secale cereale (rye) seed flour
- Barley extract
- Fermented grain extract
- Hydrolyzed malt extract
- Wheat germ
- Hydrolyzed wheat protein
- Hydrolyzed vegetable protein
- Triticum aestivum (another name for wheat)
So, I can ease this in, right?
So you’re feeling clued up on a gluten free diet and ready to go, but want to slowly integrate going gluten free in to your life. Whilst this might mean that you get to indulge in gluten-filled foods for a while longer and use up the supplies in your cupboards, bear in mind that any gluten free foods you do eat in the mean time will be pretty pointless.
See, being gluten free is like being pregnant. You either are or you’re not. There’s no ‘I’m mostly gluten free’ or ‘I’m gluten free half the time’.
Eating any amount of gluten, whether once a week or all day every day, is doing damage to you internally if you have a sensitivity, intolernace or allergy to it, so eating even a small amount isn’t going to make a big difference to what it’s doing to your body. I’ve been told numerous times that gluten hangs around in the body for up to six months! And every time you eat it, if you have Hashimoto’s, it triggers an attack on your thyroid, causing more thyroid tissue to be destroyed and so more thyroid function lost. For those who experience celiac/coeliac’s disease, damage to the surface of the small bowel (intestines) occurs every time that gluten is consumed.
So whilst you may think it’s a good idea to ease in the gluten free food, it’s actually kind of pointless, and expensive, when you think about it. You’re buying more expensive gluten free food, only for it to be not having much of a benefit since you’re eating other gluten containing foods anyway.
You can click on the hyperlinks in the above post to learn more and see references to information given, but more reading and references can also be found at:
Sign up to The Invisible Hypothyroidism's newsletter.
You'll get an easy to digest, relevant round up of thyroid news, advice and support to get you feeling better, once every two weeks.
Don’t stay feeling rubbish. Get better.
Get real, helpful advice directly from another thyroid patient. Me!
I'm writing a book!
Sign up to the updates list so you'll know when it's ready to purchase, here: http://book.theinvisiblehypothyroidism.com/
Join the community
Join My Facebook Support Group for patients Thyroid Family: Hypothyroidism Advice & Support Group
Hypothyroid patients' other halves can join my seperate group called Hypothyroid Patients Other Halves – Support & Advice Group