Untreated ‘Borderline Hypothyroidism’ Leaves Many Thyroid Patients Unwell

I hate the term ‘borderline hypothyroid’ or ‘subclinical hypothyroidism’. It leaves many people undiagnosed and ill. Many just get worse and worse with time. 

The photo on the left below is from two years ago today when I was incredibly ill from ‘only borderline hypothyroidism’, as the doctor kept telling me. You can clearly see that I was not well.
They refused to treat me for my failing thyroid gland, being destroyed by my own immune system and dismissed my concerns of feeling overwhelmingly fatigued, weak and unfit. At the end of the day on which this photo was taken, after walking around Edinburgh, I collapsed at the hotel, passing out from pure exhaustion. It took a good hour or so for me to come back around. It was very scary.
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A week later, the doctor eventually agreed to trial me on thyroid hormone replacement and agreed I had autoimmune hypothyroidism now worthy of treatment. Because he let it get that bad.

‘Borderline’ or ‘Subclinical’ hypothyroidism is a term I hate and don’t believe it actually exists. Your thyroid hormone levels are either optimal or not. So called ‘borderline’ levels are no excuse to not treat someone. They’re no excuse to withhold crucial medication or imply they’re a hypochondriac. Every person is individual, so we should be treated as such.

I lost days, months, of my life to doctors dismissing me because they went on tests and outdated, wide ranges, above my symptoms. Many patients lose whole years. Until it was so late that the medication they DID eventually give me made no difference whatsoever. My body was in too poor a state.

If your doctor has said you’re borderline or subclinically hypothyroid, then I strongly suggest you get another doctors opinion, and possibly another, and another until you’re happy. You should also have a retest of any borderline/subclinical TSH, Free T3 or Free T4 readings to see if they have gotten better or worse. They can occasionally get better, but for many, they get progressively worse.

You can click on the hyperlinks in the above post to learn more and see references to information given, but more reading and references can also be found at:

https://theinvisiblehypothyroidism.com/2016/07/09/what-does-borderline-hypothyroidborderline-underactive-mean/

http://www.thyroiduk.org.uk/tuk/diagnosis/getting_diagnosis.html

If you found this article informative, useful, helpful or in other words are grateful you stumbled across it, please consider helping me keep The Invisible Hypothyroidism running, so that we can carry on building a strong community, spreading awareness and helping each other. Running the site comes at the expense of my personal time and money from my own pocket. You can make a one-off or monthly donation to support me keeping this website going, by clicking the button below.

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I run a Facebook group, called Thyroid Family: Hypothyroidism Advice & Support Group. This group is for underactive thyroid/hypothyroidism patients only, and not medical professionals or anyone else. If you have any questions on living with hypothyroidism, or want some support, help or advice, please join us. 

I also run a group for the spouses, partners and other halves of hypothyroid patients, called Hypothyroid Patients Other Halves – Support & Advice Group. This is for the other halves only and not patients. 

-Rachel

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