Why did you set up this website?
Because I have learnt a lot on my thyroid journey, through personal experience, books, other sites (such as STTM, Hypothyroid Mom, Thyroid UK and Mary Shomon) and by listening to the thyroid patients in my Facebook support group. Patients can often tell you more than anyone about the condition. I wanted to share all of this because I do believe it can benefit others.
Are you a doctor?
No, I am not medically qualified, and this is important to be aware of. If you are planning to make any changes to your health regime, I would always suggest working with a doctor, or consulting them first. Doing anything mentioned on this site without medical input and guidance can be dangerous.
Why do you hate doctors so much?
I don’t! I respect doctors who will listen to their thyroid patient, who will work with them, who will be open-minded and treat them as an individual. They should treat each patient individually and acknowledge that we’re not all the same and many do not recover on standard T4 medicine. If it doesn’t work for us, they need to acknowledge this and explore why, with us, then help us fix or address it. Sadly, a medical professional like this is often hard to find.
To the doctors who already do this, thank you. We’re often not able to get better without you, and you are very valued and appreciated.
Some people go private with their healthcare to get this experience.
Is NDT the best thyroid medication?
It’s not as simple an answer as you think. The ‘best’ medication is what works best for you, and you feel comfortable with. T4, T4 and T3 or NDT all work well for different patients.
You should work with a doctor to find out what best works for you.
Should I switch to NDT?
This is up to you, as mentioned above. If you do want to try NDT, I would always suggest doing so with the guidance and monitoring with a doctor, as getting them to prescribe it for you is the best option. You can self-source, but there is obviously a risk that you could not be getting what you thought. It can be dangerous. Whereas you know it is NDT if prescribed by a doctor.
If you do self-source, always find and work with a doctor who knows how to dose and how to monitor your progress properly. If you choose to dose and self-medicate, which should be a real last resort, you’ll have to accept that this could be dangerous for you.
What blood tests should I ask my doctor for?
To check thyroid function, TSH, Free T3 and Free T4, are the basic ones you definitely need. If you can also get your Reverse T3, thyroid antibodies, Vitamin D, B, Iron, Ferritin and adrenals function (with a 24 hour saliva test only, not blood or urine) then this is hugely beneficial. A lot of these go awry with thyroid conditions, so worth keeping on top of. They can also cause similar symptoms to hypothyroid symptoms.
Why do you talk about adrenal glands when your blog is about the thyroid gland?
Because it’s all connected. The thyroid gland is part of the endocrine system, and so are the adrenal glands. When one isn’t working right, the other often doesn’t as well. You need to correct both to feel better if they’re out of sync. They go hand in hand.
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Why do you share such personal experiences on here?
I originally started blogging a few months before it went live. It was an outlet for me – somewhere to express my feelings, vent my frustrations and deal with what I was going through. I wasn’t sure if I would ever turn it to LIVE, but in the end I did. Because I felt that sharing my experiences would help others going through the same thing realise that they’re not alone, that they don’t have to keep quiet about what they go through, that we’re not lazy, we shouldn’t feel ashamed and it’s good to advocate for ourselves.
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I run a Facebook group, called Thyroid Family: Hypothyroidism Advice & Support Group. This group is for underactive thyroid/hypothyroidism patients only, and not medical professionals or anyone else. If you have any questions on living with hypothyroidism, or want some support, help or advice, please join us.
I also run a group for the spouses, partners and other halves of hypothyroid patients, called Hypothyroid Patients Other Halves – Support & Advice Group. This is for the other halves only and not patients.