Originally published on 5th December 2017 Last updated on 5th August 2023
The Invisible Hypothyroidism isn’t the only source of thyroid information out there. Before I started this very website, I read up about my new diagnosis and what it meant, on what must have been hundreds of different websites and articles.
Here are the resources I have created for you:
Online:
- My website articles
- My free fortnightly Email Newsletter
- My Facebook page
- My Instagram Page
- Listen to all the podcasts I have featured on here
- Read my thyroid book reviews to aid you in choosing books to help improve your health
- An Amazon Storefront
My Books – All Amazon Top 10 Bestsellers and #1 New Releases
- Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tired
- You, Me and Hypothyroidism: When Someone You Love Has Hypothyroidism
- The children’s book: Thyroid Superhero: A Kid’s Guide to Understanding Their Grown-up’s Hypothyroidism
Filtering other websites can be daunting, so I’ve summed up a list of other places to check-out below.
Those mentioned below are not necessarily endorsed by myself and I cannot control the content or opinions expressed on external websites. They are listed for you to explore. Content linked often changes.
In alphabetical order:
Butterfly Thyroid Cancer Trust
Butterfly Thyroid Cancer Trust is the first national charity in the UK dedicated solely to the support of patients with Thyroid Cancer. They offer dedicated online help to thyroid cancer patients, a ‘buddy’ to help you through treatment and an online forum.
Dr. Jolene Brighten
Dr. Brighten is a women’s health expert, coining the term ‘Post Birth Control Syndrome’, and sees many thyroid patients in her day to day practise in clinic.
Hypothyroid Mom
Dana at Hypothyroid Mom went through a traumatic experience because doctors failed to monitor her hypothyroidism correctly, resulting in her loss of an unborn child. So she began blogging and advocating in pursuit of changing thyroid treatment and subsequently, lives. She covers all sorts in the articles on her site, taking a functional medicine viewpoint, often featuring doctors as content providers. Hypothyroid Mom wrote a book with fellow thyroid patient advocate Mary Shomon.
ITT – Improve Thyroid Treatment Campaign
- To press for improved diagnosis, testing & individualised treatment of thyroid disorders, for the benefit of all thyroid patients in the UK.
- To campaign for a range of treatment options, and stop the removal of liothyronine (T3) by Clinical Commissioning Groups and Health Boards in the UK.
- To promote better understanding and education regarding the complexities of thyroid disease.
- To use members’ reports of local or national difficulties to inform our campaign.
If you are looking for improved treatment and management of thyroid disease in the UK, and wish for other treatment options besides T4-only Levothyroxine to be available on the NHS, this is the group to get involved in.
Mary Shomon: Thyroid Patient Advocate
Mary Shomon has a very popular Facebook page and writes for various websites. She’s an advocate for both hypothyroidism and hyperthyroidism patients. She has a few books:
Living Well with Hypothyroidism book
The Thyroid Diet Revolution book
The Thyroid Diet book
The Thyroid Hormone Breakthrough
The Thyroid Trust
The Thyroid Trust are able to offer information and support on their Website, Social Media Channels and through their face to face patient voices and online cafe events, all as part of their mission to make things better for thyroid patients.
Thycan Survivors
The mission of Thycan Survivors is to more accurately represent the survivorship of thyroid cancer by increasing awareness, advocacy, and understanding.
Their belief is that if thyoid cancer survivors are supported with survivor-focused awareness, advocacy and understanding, they will be able to become their own advocates and create change in medical and social fields.
Thyroid Mom
Although not as active as other thyroid advocates and writers, Thyroid Mom does have some very thought provoking blogs on congenital hypothyroidism (when it is present at birth) and the effects of this on the child and parents.
Thyroid Patient Advocacy
Another UK charity, TPA is an independent organisation that also work towards establishing better diagnosis and treatment of hypothyroidism in patients. Dr Barry Durrant-Peatfield was a Trustee and Dr Kent Holtorf a Medical Advisor. Dr Durrant-Peatfield’s book is below.
The Great Thyroid Scandal book
Thyroid Patients Canada
Thyroid Patients Canada is a nonprofit corporation registered with the Government of Canada. They promote health by providing individuals with thyroid disabilities with access to patient-led peer support communities and science-based public education, and by publicly advocating for improvements to thyroid health care policy and research.
Thyroid Pharmacist, Izabella Wentz
Izabella Wentz, the ‘thyroid pharmacist’ developed Hashimoto’s and hypothyroidism. Through her own determination and knowledge as a medical professional, she has managed to reverse her autoimmune condition by implementing several lifestyle and diet changes.
Hashimoto’s Protocol book
Hashimoto’s Thyroiditis book
Thyroid Survivor Network
The Thyroid Survivor Network offers online support groups on Facebook for fellow thyroid survivors to come share their experiences, gain knowledge and find support.
Thyroid UK
Thyroid UK, a charity, work on improving the diagnosis and treatment of thyroid disease and are often at the front of campaigns and studies.
6 Comments
Elaine hollins
May 9, 2021 at 9:58 amThyroid UK on Health Unlocked have an interactive forum to talk to others online about what you’re going through.
Murray V Duffin
November 1, 2020 at 12:41 amhttps://thyroidpatients.ca/
Zana Carver
January 18, 2019 at 6:16 pmWords cannot express how wonderfully written and valuable, “Be Your Own Thyroid Advocate”, is to people who struggle with their thyroid health. I gave the book a 5-star review for being a thorough and helpful resource but more importantly, written for thyroid patients from a thyroid patient. Rachel has a wonderful ability to connect with her reader and I was hooked from the first page! My favorite parts are Rachel’s conversation with her doctor after going on NDT and the letter for the friends and family of thyroid patients. Your book should be included along with all of these wonderful thyroid resources.
J M Reid
September 3, 2018 at 8:02 amI read the Watts Report some years ago which made me realise that we are not being treated medically as correctly as we should be and which gave me confidence to look for more information, very grateful to Rachel for her tireless efforts on our behalf
Rachel Hill
September 3, 2018 at 8:05 amThank you. Do you know where I would find the Watts Report to read?
Caz
December 6, 2017 at 5:58 pmGreat resources! Thanks for sharing these 🙂