Originally published on 3rd November 2017 Last updated on 19th October 2023
Do you still feel unwell on thyroid medication even though your doctor is insistent that your test results are coming back ‘fine’ or ‘normal’?
Perhaps your doctor isn’t running all the thyroid tests that you need?
Many thyroid patients benefit from being more involved in their thyroid care and treatment, which is where self-testing and the ability to order your own tests can be critical tools for empowering yourself.
More and more thyroid patients are ordering their own tests online, including myself, because they’re wanting to become more involved in their own health and treatment, or to perhaps fill in the blanks where their doctor is letting them down with thyroid issues.
Why You Can Benefit From Ordering Your Own Thyroid Tests.
A lot of doctors only test TSH (Thyroid Stimulating Hormone) and go by it entirely to decide on your course of treatment for hypothyroidism, but this isn’t accurate on its own.
TSH is a hormone secreted by the pituitary gland. It serves as an average read out over the previous four to six weeks of your thyroid levels.
It in turn tells the thyroid how much hormone to produce. By only testing TSH and not the actual thyroid hormone levels (Free T3 and Free T4), you’re not getting the most comprehensive and accurate view of your thyroid health and thus, the best treatment. You can read more on Why Going by TSH Alone Is Inaccurate here.
Another factor to consider is whether your hypothyroidism is autoimmune, which it is for around 90% of us, and this can affect which road we take to recovery hugely, yet many patients have never been tested for Hashimoto’s.
Related Article: Why It’s Important to Know if You Have Hashimoto’s
For this, you need to test thyroid antibody levels. I can’t stress how important it is to know whether your hypothyroidism is autoimmune – for me, I only started to see an improvement in symptoms when I implemented changes to address the autoimmune condition causing the underactive thyroid.
The Importance of Adrenal Health
As knowledge on Adrenal dysfunction continues to grow, many of us are also checking for this and it is overwhelmingly common in thyroid patients.
Symptoms of adrenal dysfunction include but are not limited to:
weight gain, ongoing fatigue, trouble sleeping, sugar or salt cravings, being over-emotional, anxiety, hot flushes, brain fog, dizziness, jumping at sudden or loud noises and a lot more.
For a lot of us, adrenal issues are causing some of our ongoing symptoms with hypothyroidism.
You Need The Full Thyroid Panel Testing
A full thyroid panel includes:
- TSH
- Free T3
- Free T4
- Thyroid antibodies TPOAB and TGAB
This collection of tests give a comprehensive overview of your thyroid function and levels, to help produce the most accurate treatment plan for you, so that you can get optimal on your thyroid medication and begin to feel better.
Because being optimal matters. It matters entirely.
Where Can I Order My Own Thyroid Tests From?
Below are a couple of places I recommend…
For the UK: Medichecks
Medichecks is a very popular choice for inexpensive yet comprehensive home-testing with a fast turn around in the UK.
You can order:
- A full thyroid function test
- Cortisol testing for checking adrenal dysfunction
- The test I most often order myself – The Advanced Thyroid Function Blood Test, which checks the full thyroid panel (including antibodies) as well as vitamins and minerals such as Vitamin D, B12, Ferritin and Folate.
Results are then securely emailed to you with commentary made by their in-house doctors, letting you know how to proceed with your health.
My followers can also use the discount code INVISIBLE10 for 10% off tests.
US: LetsGetChecked
Another trusted place you can order some more in-depth thyroid testing is LetsGetChecked, who offer countless tests. LetsGetChecked cover most of the world.
You can order:
-
- A full thyroid function test
- Thyroid antibodies / Hashimoto’s testing
- and many more.
LetsGetChecked offer a one-on-one test results review with their dedicated team of doctors and nurses which are available 24/7 and will call you to explain your results.
My followers can also use the discount code 25INVISIBLE for 25% off tests.
A longer list of places (sorted by country) to order your own tests online can be seen here.
My Experience
My experiences of ordering my own tests online is that it’s a really easy and quick way of getting a full picture look of my thyroid levels. I order my own tests from the above websites at least two or three times a year.
I always suggest that thyroid patients empower themselves by doing their own research and become their own thyroid advocate. It makes such a difference in how well-managed your thyroid condition is, to be clued up on what’s going on.
22 Comments
Elaine Stafford
March 15, 2023 at 7:13 pmMarch 2023
Hi Rachel:
I was diagnosed with Hashimotos thyroiditis in 2014. I live in Kentucky. I have struggled with this horrible condition for about 12 years. I am on Levonthyroxine. However, I still struggle with debilitating fatigue. I believe my liver is overburdened and my adrenal glands are not balanced. I am interested in getting a list of functional physicians who may treat my condition virtually through zoom meetings. Also, I am interested in getting food menus and a diet that helps you feel better with hashimotos thyroiditis.
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Any information you can provide would be very helpful and appreciated.
Sincerely,
Elaine Stafford
Noel
February 26, 2023 at 11:32 pmHello, i don’t know where to begin but I was diagnosed with Ankylosis Spondylitis a decade ago and have been fighting with that with some success until about a year ago I am now feeling like my biggest issue is possible hypothyroidism. I have so many symptoms and my life just flat out sucks right now. I am pleading with my endo. To let me try medication for it. I have low Testosterone low T4 free and the other tests always fluctuate with testosterone as low as 60 . I feel like I have been medicated for many things with the AS being correct but ADD and some others not the real reason for my lack of energy and concentration. What should i be doing and is there a natural way to aid the thyroid to see if it is that if a Dr won’t help.
Josie Beras
December 27, 2021 at 2:57 amI just came across your page and for the first time in a while I feel like someone understands. I recently learned that my thyroid is off balance and started on levothyroxine. I feel worse than I did before starting it. I’ve been experiencing weird brain zaps and dizziness. It’s been so bad these past couple of days but have had no choice but to push through it because we are hosting family for the holidays. My scalp often feels like I have little critters crawling on it, my skin is scaly and lackluster and I wake up with a sore tongue because it seems like I bite on it in my sleep. I hate how I’m feeling and I hate that I am so fatigued that I am unable to play with my kids the way that they and I would like. Can someone just answer me this, does it get better? Does medication work? What’s the right dosage? I know that our bodies are all different, but I need a bit of hope right now.
Rachel Hill
January 6, 2022 at 12:55 pmH Josie – it can be useful to start with a full thyroid panel of tests to gauge where your levels currently are, and to see what the levo is doing to these. These include TSH, Free T3, Free T4, Tpoab and Tgab (antibodies). I’m so sorry to hear you’re still feeling so unwell – I can relate as I felt the same on Levothyroxine-only even though I was very keen for it to work and resolve my symptoms.
Things CAN get better and the right medication can help a tonne with that. It’s not just about the dosage but also the type of thyroid med. Have you checked out my book “Be Your Own Thyroid Advocate”? I have hundreds of articles covering all these topics on my website right here, but if you’re looking for something more concise and all in one place, the book is a good place to start. Best wishes x
Rebecca
June 24, 2021 at 7:04 pmDoes anyone know if taking thyroid glandulars can increase free T3?
Musical Lottie
April 25, 2021 at 11:14 pmI see conflicting things about whether to fast or not before thyroid blood tests. Do you have any advice, please?
Rachel Hill
May 2, 2021 at 9:39 amHi, please see my information on this here: https://www.theinvisiblehypothyroidism.com/what-you-need-to-know-about-doing-thyroid-blood-tests/
Tor
September 22, 2019 at 6:44 pmThanks a whole lot for this amazing site. I like that it combines conventional plus informal options.
Bec
July 28, 2019 at 9:10 amHi there,
Do you know where I can get tests done if Im in New Zealand?
So desperate for answers.
Bec
Rosemary
July 5, 2019 at 8:54 pmCould you please advise on best Labs to use for those of us in Australia?
Thanks
Rachel Hill
July 5, 2019 at 8:59 pmHi Rosemary – some for Australia are listed here 🙂 https://www.theinvisiblehypothyroidism.com/where-can-i-order-my-own-tests/
Kathy
November 17, 2018 at 7:04 pmI think having your own testing done is great. However you do not have a place for Canadians to go to. Can you tell me where i can go in Canada to have my own testing done????
Rachel Hill
November 17, 2018 at 7:33 pmHi Kathy, LetsGetChecked cover Canada: https://trylgc.com/invisible
Carl
November 9, 2018 at 10:43 amThis post is very important for thyroid patients. Thank you.
Ray
October 21, 2018 at 11:31 pmHello Dr. Rachel
I have continued pain in my back (side) area. I keep thinking it’s my adrenals. It’s daily and will come and go.
Rachel Hill
October 23, 2018 at 8:52 amHi Ray, considering the location of the adrenal glands, it could well be. Best to ask your doctor and get checked out.
Ashi Singh
October 18, 2018 at 9:56 amOnce you get to know you have hypothyroidism, things change. Thanks for doing a great job on such an unusual but most common problem of women. Keep it up.
Rachel Hill
October 23, 2018 at 8:52 amThank you
Marylou
March 7, 2018 at 12:54 amIs anxiety curable? I’ve been getting treatment for years and I still get bad symtoms sometimes. I would appreciate any insight you can provide.
Rachel Hill
March 7, 2018 at 6:59 pmIt depends what is causing it for you. Some people do find that therapy such as CBT helps, but for a lot of people with thyroid issues, getting their thyroid levels (namely free t3), adrenal function and vitamin levels all optimal and good, helps. I have a blog specifically about mental health with Hypothyroidism that you’d probably find helpful: https://www.theinvisiblehypothyroidism.com/mental-health-and-your-thyroid-and-adrenals/
Stephanie
December 5, 2017 at 8:18 pmHi Dr. Rachel. What are your thoughts on an at home thyroid test that uses a blood prick sample? I was looking at one from Health Test Express that screens for Free T3, Free T4, TSH, and TPO. Looks like they also provide a doctor consult to help understand the results or refer to specialists. Here’s the link if you can provide your feedback: https://www.healthtestexpress.com/thyroid-test-panel/
Lady E
January 29, 2018 at 9:55 pmI just did their test! It took a few weeks, but I just got my results today. From what I’ve read online, it’s an accurate way of testing. I was skeptical because I’d never heard anything about the company before and couldn’t find anything about them online, but it’s a good way of testing without having to go to a lab